waiting area

April 16, 2012 § 16 Comments

Patient names have been changed.

It takes me a moment to place her. You know how it is when you see a face you recognize, but you’re not sure from where. Then it hits me: Joanne, from my Monday group. I’ve not seen Joanne outside of Hester’s office, or without that green plaid scarf turned round like a turban on her head. Today she sports a cap, a fitted cap. The plaid scarf dangles out of her purse, a thin book on top. I try to make out the title, but between the text size and the distance, it’s too difficult to read, and like everything else that is too difficult to deal with, I move on.

Joanne hasn’t noticed me yet, so I use the brief reprise from social obligation to indulge in the colors and textures she has adorned herself in today, starting with the soft blue cap on her head. Fuzzy fibers halo the crown – mohair or angora? Fibers that, anywhere else, would smell fresh like baby powder. But nothing smells fresh here, Shapiro 9 Oncology Waiting Area # 1. The deep breaths we take for stethoscopes and exams fill our lungs with a mixture of rubbing alcohol and anxiety. Smells of life are elsewhere, on another floor, another building, another story all together.

Shapiro 9 has two large waiting areas and two large treatment areas, a warren of offices, exam rooms, rooms with “caution” signs on the doors or “authorized personnel only,”  and a modest gift shop near the bank of elevators that sells wigs and hats and jewelry just in case your chemotherapy requires a booster of retail therapy.

Tucked in a far corner of the sprawling Oncology Hematology floor is Hester’s office. The plaques on Hester’s wall are testament to her accomplishments, the books she’s authored scattered on side tables. But nothing inside or outside her office signals the depths of Hester’s gifts as a healer. She isn’t a doctor, though she’s married to one. She can’t cure cancer, nor does she know what might. But, she does make it easier to deal with, and that is very important to me and to all the other women she counsels.

On Tuesdays Hester holds court for “women newly diagnosed.” I spent many Tuesdays in her office with similarly afflicted woman until a couple of years ago when I graduated to Monday’s group.

Monday’s group is reserved for the pale castaways, “women living with advanced disease.”  Hester is a master of compassion and, in her Dojo, we can prepare ourselves for battle: the scans, the next treatment, the loss of desire, the loss of hair, the loss of other members of the group.

Loss has been a common theme except where my weight is concerned. I might be able to forget I have cancer, but not the ten pounds I gained in treatment. I despise scales, especially hospital scales. I walk past them as quickly as possible on my way to the Monday group.

If you can answer “yes” to living with advanced disease, or metastatic disease, or stage IV cancer you are welcome to join. No need to knock, no initiation fee, just drop by between 11:30 and 1p. The size of our group varies, attendance is never taken, and no one is tardy. We arrive in dribs and drabs for a round robin of sharing, each of us taking a turn discussing the highs and lows of life on loan. We let rip whatever comes to mind; mundane or morose, everything is fair game. We are a secret society of seriously ill sisters.

Paula’s hair is tousled just enough to look real. And, after a decade on Taxol, her smile has not diminished and her skin still signals rigorous exercise.  These are my beacons of hope, the women living for decades.  Statistics are irrelevant, we’ve already beaten the odds. But the abyss is close by: Laura stopped being coherent shortly after brain metastases captured what was left of her grey matter. The following week she was in hospice, a week later she passed.

There is no group today. I am on the 9th floor waiting for my blood tests and weekly chemo infusion. Joanne must be doing the same. I speak up; tell her that I like her fuzzy cap. We chat and smile like two people anywhere. She complains that she is cold and pulls the plaid scarf from her purse. Her paperback falls to the floor. I pick it up, see the title now, and say nothing, handing the book back to her. “Becoming Friends with Death.” Maybe she’ll want to discuss it at next Monday’s group. I don’t want to touch the book, or the topic. Someone calls my name. “Marilyn Kass” I cringe, it’s time for vital signs. Have I told you how much I hate getting weighed?

This piece was written for inclusion in the COL Book of Writing. 

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§ 16 Responses to waiting area

  • Marilyn, Lovely piece. So glad you have Hester’s support. And, yeah, we hate that weight gain–and I don’t have treatment to blame!! Sharing a hug!

  • lindabutton says:

    So glad you’re writing again–and to read this beautiful, moving post. xoxo

  • Margaret J says:

    Your words leave me speechless and teary. You have so many gifts that you share, and it wonderful that you are sharing your thoughts with words again. Love ya, sistah.

  • Liz Hill says:

    Thanks for continuing to share, Marilyn. Your keen and colorful insight, humanism, and lust for life shine through with each post. You continue to inspire, even from the Shapiro 9 Oncology Waiting Area #1. XOXOXO Lizzy

  • paula says:

    I feel sober, reading about your day, your journey to heal and survive cancer, stay with us for decades, we need you, we really need you.

  • Karen Silver says:

    Beautiful as always, Momo. You are so good at helping us begin to understand what it is really like day to day. Thank you for sharing your life with us.

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